Saturday, August 11, 2012

Today's Cystic Fibrosis Clinic. say what?

CF Clinic Results & The Day with Ryan!

My day started off a little rough. My car wouldn't start. Its in my garage completely dead. I had to call my sister and take her car to clinic. I picked up Ryan and we headed off. We decided to eat first. We ate at Yardhouse, which is one of my two favorite restaurants in the area AND we happened to get very lucky while there! There was a Art festival going on in that shopping district. We got to see all the art and then go to my appointment.

Okay, I will get to the numbers!!! Well, my weight did go down from my last clinic. But I knew that was going to happen. It was 104 today and was 107 last time (1.5 months ago). However, he gave me scripts and orders for a new medicine for my "mummy disease" and wants me to get blood work done next time it happens, so we can see what is going on exactly. I also have an appointment for my mediport to be flushed with TPA and a consult for my G-tube to get a different size put in. So problems were solved!

AND my vitamin D is in the 50s now! After it being 25, 14, etc. It's now in the 50's. I just have to take the large 50,000 Units dose twice a week (instead of daily). Then I found out my lung function went from 58% to 61%. My goal was 60 for this clinic! I'm on my way to the 70s! Dr. B showed me that since I started with him in Feb 2011 I have gone from 48% to 61%. FREAKING exciting!

I'm on the right track and was so happy my clinic didn't turn out bad afterall. After Clinic, we drove to IKEA and Crate and Barrel. I had a ton of fun shopping with Ryan. We even stopped for DQ on the way home to top the day off! GREAT DAY!

I'm sooo ready to work really hard for the next 3 months to have an amazing clinic in November! YAY!


  1. Great news Cheriz! I'm so glad things are going in the right direction for you! Keep up the good work!

  2. That is wonderful! Awesome news! Keep going strong!!